Emilie is a happy loving 8 year old little girl that will NOT let Cystic Fibrosis get in her way! She attends an online school for 2nd grade and is excelling. She is also very active with bowling, dance, Girl Scouts and 4-H!
Emilie is also one of the lucky few to get to be taking Kalydeco which has been a total game changer for her. She has been hospitalized for her CF only 1 time (and for that we feel blessed); however, she has been inpatient many times (at least 4 that I can think of) for CF related pancreatitis. That is where the Kalydeco comes in. Since starting the little blue pill last May, her pancreatic levels have come down to normal and she is feeling great.
Emilie would also like to say thank you to all those CFSN supporters for making things like Summer Adventure and C.A.R.E. packages possible!